父母对自闭症儿童睡眠障碍管理的经验:一种定性研究
Feifei Shi1, Mei He2, Juan Li3
1Nursing Department, Mianyang Central Hospital, Mianyang, China.
Research in developmental disabilities
|May 8, 2025
概括
管理自闭症儿童睡眠障碍的家长面临着重大挑战,包括知识差距和情绪负担. 了解这些家长的经历对于在中国制定有效的支持策略至关重要.
科学领域:
- 儿科睡眠药物 儿童睡眠药物
- 自闭症谱系障碍研究研究
- 家长的心理健康
背景情况:
- 睡眠障碍在患有自闭症谱系障碍 (ASD) 的儿童中很普遍.
- 父母是管理ASD儿童睡眠问题的关键.
- 在亚洲背景下,关于父母经历的研究有限.
研究的目的:
- 探索父母在中国的ASD儿童管理睡眠障碍的经验.
- 从父母的角度了解挑战和应对机制.
主要方法:
- 描述性的定性研究设计.
- 与14名患有自闭症和睡眠障碍儿童的父母进行了半结构面试.
- Colaizzi描述性分析框架用于数据解释.
主要成果:
- 家长们报告说,在睡眠管理方面存在困境,理由是缺乏知识和医疗保健专业人员的关注不足.
- 确定了重要的身体和心理负担,包括疲,内,焦虑和无助感.
- 在父母之间观察到不同的应对方式,无论是积极的还是消极的.
结论:
- 父母在管理ASD儿童的睡眠障碍方面面临着巨大的挑战.
- 家长们采用各种各样的应对策略.
- 建议加强医疗保健专业人员的专业培训和支持,以更好地协助父母.
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