弱势群体的知情同意:注意力缺陷多动障碍被拘留者的案例
Stéphanie Baggio1,2, Leonel da Cunha Gonçalves1,3, Patrick Heller3,4
1Institute of Primary Health Care (BIHAM), University of Bern, Bern, Switzerland.
概括
注意缺陷多动症 (ADHD) 并没有显著影响被拘留者的知情同意理解或签署意愿. 对研究同意的总体理解仍然很低,需要改善对弱势群体的方法.
科学领域:
- 临床心理学 临床心理学
- 神经科学是一个神经科学.
- 医学伦理 医学伦理
背景情况:
- 知情同意 (IC) 对于道德的人参与者研究至关重要.
- 对IC信息的理解往往是有限的,特别是在弱势群体中.
- 注意缺陷多动障碍 (ADHD) 对被拘留人群中IC理解的影响还未得到充分研究.
研究的目的:
- 调查ADHD与被拘留者对知情同意 (IC) 的理解之间的联系.
- 评估ADHD是否影响该人群签署IC的意愿.
主要方法:
- 从瑞士监狱中的随机试验中获得的数据的二次分析 (n=183).
- 统计回归模型被用来比较IC理解和签名的意愿与没有ADHD查的个体之间.
- 用查工具评估参与者是否有ADHD.
主要成果:
- 具有 (平均值=5.2) 和没有 (平均值=4.9) ADHD查的个体之间的IC理解得分没有显著差异 (p=.468).
- 群体之间签署IC的可比接受率:83.3% (ADHD) 与84.9% (非ADHD) (p=.814) 相比.
- 在两组中都观察到总体较低的IC理解水平.
结论:
- 在被拘留者中,ADHD并没有显著影响知情同意理解或参与决策.
- 这些发现凸显了弱势群体在理解研究同意信息方面的普遍缺陷.
- 需要量身定制的策略来增强被拘留者的IC理解力,无论ADHD状态如何.
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