患有ALS的电动轮椅使用者:警报系统对长时间坐着和电源功能利用并发症的影响
Amber L Ward1, Carla Nooijen2, Jennith Bernstein3
1Neurology Specialty Care-Edgehill, Atrium Health, Charlotte, North Carolina, USA.
概括
虚拟座椅教练 (VSC) 警报可能有助于肌缩侧面硬化症 (ALS) 患者利用动力轮椅功能来重新分配压力,从而可能减少伤害和疼痛.
科学领域:
- 康复工程 康复工程
- 辅助技术 辅助技术 辅助技术
- 神经肌肉疾病管理管理
背景情况:
- 压力损伤对具有运动障碍的人来说是一个显著的并发症.
- 有效的压力再分配对于防止电动轮椅使用者的皮肤损伤至关重要.
- 肌缩侧面硬化症 (ALS) 对保持坐姿和减轻压力提出了独特的挑战.
研究的目的:
- 评估一种干预技术 - - 虚拟座椅教练 (VSC) 在促进压力再分配方面的有效性.
- 确定VSC警报是否可以增加动力轮椅座椅功能的利用率.
- 评估VSC对ALS患者压力损伤和疼痛水平发生率的影响.
主要方法:
- 一项干预性研究涉及39名ALS患者,其中14人使用虚拟座位教练 (VSC),25人作为对照.
- VSC通过应用程序提供每小时的警报,让参与者使用电动轮椅座椅功能进行压力再分配.
- 数据收集包括1个月或3个月的随访,以评估粘附度,压力损伤和疼痛.
主要成果:
- 尽管面临技术和疾病相关的挑战,但三名参与者使用了VSC,其中两名参与者在警报后坚持压力再分配.
- 三名VSC用户中没有人报告压力损伤,而21名对照组中只有12人报告压力损伤.
- VSC使用者报告疼痛减轻,而大多数对照患者的疼痛增加.
结论:
- 虚拟座椅教练 (VSC) 技术显示了改善使用电动轮椅的ALS患者压力损伤预防和疼痛管理的潜力.
- 遵守压力再分配警报是VSC有效性的关键.
- 疾病的进展和对轮椅控制的访问对实施这些技术存在重大限制.
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