患者和非正式护理人员在IBD护理中重视什么? 一个叙述性的调查
Britt J M Thomassen1,2,3, Evelien M B Hendrix4,5, Zlatan Mujagic4,5
1Department of Gastroenterology and Hepatology, Maastricht University Medical Centre+, PO box 5800, Maastricht, 6202 AZ, The Netherlands. b.thomassen@maastrichtuniversity.nl.
BMC health services research
|May 10, 2025
概括
患者和护理人员重视清晰的信息,支持和积极参与炎症性肠病 (IBD) 护理. 值得信赖的专业人员和有效的治疗,使正常生活至关重要,远程护理补充门诊服务.
科学领域:
- 胃肠病学 胃肠病学
- 数字健康数字健康
- 以患者为中心的护理
背景情况:
- 炎症性肠病 (IBD) 是一种日益严重的慢性疾病,对患者,家庭和医疗保健系统产生重大影响.
- 数字技术为提高IBD护理效率和减少IBD护理工作负载提供了潜力.
- 成功的医疗保健创新需要患者和非正式护理人员的积极参与.
研究的目的:
- 确定患者及其非正式护理人员重视的炎症性肠病 (IBD) 护理的关键要素.
- 为IBD管理中以患者为中心的创新提供信息.
主要方法:
- 与18名IBD患者和8名非正式护理人员进行了以叙事方式进行的半结构面试.
- 参与者来自荷兰的学术和非学术医院.
- 诱导主题分析用于分析采访成绩单,重点是现实生活经验.
主要成果:
- 患者和护理人员高度重视清晰的信息,对疾病管理的全面支持,以及积极参与治疗规划.
- 与值得信赖的医疗保健专业人员 (HCP) 保持一致的联系和缓解症状的治疗对于正常生活至关重要.
- 患者欣赏一个整体的,个性化的方法,欢迎值得信赖的远程护理对随访和自我管理,只要门诊即可.
结论:
- IBD护理的有价值的组成部分包括强有力的支持,患者参与,以人为中心的哲学,可访问的门诊服务,一致的HCP关系和综合远程护理.
- 在IBD护理方面的创新应该优先考虑这些以患者和护理人员为中心的要素.
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