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沟通患者报告的成年人沟通障碍的结果措施:内容有效性的系统审查
Lizet Van Ewijk1, Katerina Hilari2, Analisa Pais3
1Research Group Speech and Language Therapy, Participation through Communication, Research Centre Health and Sustainable Living, HU University of Applied Science, Utrecht, the Netherlands.
概括
大多数患者报告的沟通障碍的结果测量 (PROM) 缺乏足够的内容有效性. 未来的PROM需要与用户和专业人员进行严格的开发和测试,以确保相关性和质量.
科学领域:
- 沟通科学与疾病 沟通科学与疾病
- 心理测量 心理测量 心理测量
- 健康 结果 研究 研究 结果
背景情况:
- 内容有效性对于选择患者报告结果指标 (PROM) 至关重要.
- 许多疾病特异性PROM存在于沟通障碍,但它们的内容有效性质量基本上是未知的.
- 内容有效性在研究中经常被忽视,尽管它在结果测量中的重要性.
研究的目的:
- 系统地评估现有的沟通PROMs的内容有效性,针对有沟通障碍的成年人.
- 评估PROM开发的质量和可用的内容有效性研究.
- 提供关于通信PROMs内容有效性的全面概述.
主要方法:
- 通过使用COSMIN方法的系统文献审查评估了25个PROM.
- 评估PROM开发质量 (第一步),内容有效性研究质量 (第二步) 和整体内容有效性 (第三步).
- 包括在各种沟通障碍中评估与沟通相关的结构.
主要成果:
- 25个PROM中的21个具有不充分的开发质量.
- 只有五个PROM的内容有效性研究可用,所有这些都被评为可疑或不充分.
- 内容有效性的总体证据质量非常低,只有CPIB和Neuro-QoL显示了中等质量的证据.
结论:
- 关于通信PROMs的开发和内容有效性的高质量的证据非常稀缺.
- 为未来的PROMs开发,呼吁采取行动,强调严格的方法和目标群体和专业人员的纳入.
- 确保良好的内容有效性对于在结果测量中捕捉相关,可访问和全面的客户需求至关重要.
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