多发性硬化症护理中的基于种族和地点的差异:对患者经验的定性研究
Kavya Bhattiprolu1,2, Brett L Opelt1,3,4, Miranda R Jones5
1Department of Physical Medicine and Rehabilitation, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
概括
种族和地理因素影响了多发性硬化症护理经验. 黑人患者报告了保险和歧视问题,而白人患者指出更好的提供者访问,突出了医疗保健的差异.
科学领域:
- 神经免疫学 神经免疫学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 多发性硬化症 (MS) 是一种神经退行性和神经炎症性疾病,影响身体和认知功能.
- 在MS的结果中存在种族差异,与白人相比,黑人个体的结果更差.
研究的目的:
- 调查黑人和白人参与者之间多发性硬化症 (MS) 护理经验的种族和地点差异.
主要方法:
- 通过四个重点小组和十次采访,从20名患有多发性硬化症的成年人收集了定性数据.
- 音频录音被转录,用NVivo编码,并使用主题分析进行分析.
主要成果:
- 关键主题包括医疗质量,健康素养,患者提供者沟通,MS,地理位置和种族.
- 黑人和白人参与者之间经验的相似性和差异被确定.
结论:
- 黑人和白人参与者都报告了积极的MS护理经验.
- 黑人参与者强调了对医疗保险和歧视的担忧.
- 白人参与者报告说,基于他们的位置,他们更容易获得医疗保健提供者.
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