日本慢性心力衰竭患者如何看待他们的疾病,自我护理和支持?
Shoko Nagata1, Kosuke Shiki2, Nobutaka Yagi3
1Patient Engagement, Nippon Boehringer Ingelheim Co., Ltd., ThinkPark Tower 2-1-1 Osaki Shinagawa-ku, Tokyo, 141-6017, Japan. shoko.nagata@boehringer-ingelheim.com.
Advances in therapy
|May 12, 2025
概括
日本慢性心力衰竭 (HF) 患者希望了解更多关于HF治疗,饮食和生活方式的信息. 加强患者教育和多学科支持对于改善自我护理和慢性心力衰竭管理的结果至关重要.
科学领域:
- 心脏病学 心脏病学
- 公共卫生 公共卫生
- 患者护理 患者护理
背景情况:
- 慢性心力衰竭 (HF) 在日本越来越令人担忧,需要有效的生活方式管理.
- 不够的自我照顾行为与HF患者的住院和死亡率增加有关.
- 在慢性HF患者中,自我护理意识存在着公认的差距.
研究的目的:
- 调查日本慢性心力衰竭患者的自我护理行为和需求.
- 了解与慢性HF相关的身体和情绪负担.
- 确定患者需要额外信息和支持来管理病情的领域.
主要方法:
- 一个采用顺序解释设计的混合方法研究.
- 定量阶段:匿名在线调查分发给262名参与者,其中162人完成.
- 定性阶段:与15名分层随机抽样参与者进行半结构面试.
主要成果:
- 参与者经历了显著的身体负担 (例如,行走,楼梯) 和情绪上的痛苦.
- 大多数人对医生指导表示信任,并报告高度遵守自我护理.
- 关键信息需求包括HF治疗细节,饮食建议和减轻负担的生活方式建议.
结论:
- 患者教育对于有效的慢性HF管理至关重要.
- 多学科支持系统对于改善患者的治疗结果至关重要.
- 解决患者识别的信息缺口可以增强自我护理和减少HF负担.
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