影响自闭症谱系障碍家庭管理的多维因素:一种混合方法研究
Shayleigh Dickson Page1, Kylie Trone2, Margaret C Souders1,2
1University of Pennsylvania, Philadelphia, USA.
Journal of family nursing
|May 13, 2025
概括
照顾患有自闭症谱系障碍 (ASD) 的儿童需要独特的家庭管理模式. 儿童的行为,如侵略和睡眠问题,以及照顾者的社会支持,显著影响这些模式.
科学领域:
- 儿科健康 儿科健康
- 自闭症谱系障碍研究研究
- 家庭护理 家庭护理
背景情况:
- 患有自闭症谱系障碍 (ASD) 的儿童有复杂的健康需求,通常伴有同时出现的医疗和精神疾病.
- 有效的家庭管理对于支持自闭症儿童及其照顾者至关重要.
- 家庭管理风格框架为了解慢性疾病护理中的家庭动态提供了一个结构.
研究的目的:
- 检查能力和努力的交叉在定义家庭管理模式的孩子与ASD.
- 评估儿童,照顾者和家庭因素对这些家庭管理模式的影响.
主要方法:
- 采用了融合并行混合方法 (QUAN + qual) 的设计.
- 从56名患有自闭症儿童的主要照顾者那里收集了定量数据.
- 通过与30名护理人员的嵌套样本进行半结构面试,收集了定性数据.
主要成果:
- 确定了四种不同的家庭管理模式,与之前的研究一致.
- 儿童的特征,包括自闭症行为,睡眠障碍,侵略性和自我伤害,是家庭管理的重要预测因素.
- 护理人员感知到的社会支持成为影响家庭管理的关键因素.
结论:
- 特定的儿童特征和护理人员的社会支持是ASD家庭管理模式的关键相关因子.
- 了解这些模式对于指导ASD儿童的家庭护理干预至关重要.
- 这项研究强调了需要量身定制的支持策略,以满足儿童的特定需求和照顾者的福祉.
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