"我会后悔这个吗? ":自闭症成年人诊断披露的经验
Sheena K Au-Yeung1, Megan Freeth1, Andrew R Thompson2,3
1University of Sheffield, UK.
概括
成年自闭症诊断的披露是复杂的,自闭症成年人使用它来获得支持和自我接受. 然而,许多人面对不信任,强调需要更好的诊断后支持披露对话.
科学领域:
- 神经发育障碍 神经发育障碍
- 心理学 心理学 心理学
- 社会科学 社会科学 社会科学
背景情况:
- 成年人中自闭症诊断率的增加.
- 关于自闭症成年人披露经验的有限研究.
- 披露是成人自闭症诊断的一个关键方面.
研究的目的:
- 探索自闭症成年人的诊断披露生活经验.
- 了解与披露相关的功能和挑战.
- 确定对诊断后支持的需求.
主要方法:
- 解释性的现象学分析 (IPA).
- 与12名在成年后被诊断为自闭症的成年人进行半结构面试.
- 严格的质量控制和反射性程序.
主要成果:
- 披露有多种功能:获得支持,自我实现和积极性.
- 参与者通过管理信息和反应来导航披露,有时从诊断前开始.
- 负面经历包括不信任和未满足的需求,导致谨慎;积极的经历涉及接受和社区.
- 为了准备披露,我们得到了各种各样的支持.
结论:
- 诊断后的支持对于导航披露的实用性和后果至关重要.
- 临床医生应该将披露讨论纳入常规支持中.
- 解决偏见和提供一致的支持可以改善披露结果.
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