疑似罕见疾病患者持久性身体症状相关的心理过程:一个横截面试研究
Biopsychosocial science and medicine
|May 13, 2025
概括
患有罕见疾病的患者经常面临医疗保健挑战,心理因素影响他们的持续性身体症状 (PPS). 了解这些经验对于改善护理和管理复杂的身体状况至关重要.
科学领域:
- 医学人文学科 医学人文学科
- 精神病体医学是一种精神病体医学.
- 罕见疾病研究 罕见疾病研究
背景情况:
- 怀疑患有罕见疾病的患者往往呈现异质和不特定的持续性身体症状 (PPS).
- 了解这些患者的主观经验和疾病模型对于有效的诊断和治疗至关重要.
- 心理因素可能在这些症状的发展和持续中发挥重要作用.
研究的目的:
- 调查罕见病中心患者的主观经验和疾病模型.
- 在疑似罕见疾病的患者中,确定与持续的身体症状 (PPS) 相关的心理因素.
主要方法:
- 对27名怀疑患有罕见疾病的成年患者进行了半结构面试.
- 数据收集包括数值评分表和关于疾病负担,医疗保健经验和主观疾病理论的开放式问题.
- 用定性内容分析来分析采访数据.
主要成果:
- 所有患者都报告了负面的医疗保健经历,包括紧张的医生患者关系和对护理的不满.
- 负面影响PPS的因素包括生活事件,心理压力和症状焦点; 报告称心理治疗和乐观是改善因素.
- 疾病模型各不相同,其中一些整合了心理社会方面,而另一些则倾向于生物医学解释.
结论:
- 怀疑患有罕见疾病的患者在诊断旅程和症状管理中遇到许多挑战.
- 心理因素似乎对在罕见病中心的患者中观察到的复杂且往往不特定的体征症状有显著的贡献.
关键词:
= 马丁·扎伊茨罕见病中心= 参与者的数量.NRS = 数字评级规模的数值评级规模.PPS = 持续的身体症状.STROBE = 加强流行病学观察研究的报告.UKE = 汉堡-埃潘多夫大学医学中心.持续的身体症状 (PPS)持续的身体症状 (PSS) 持续的身体症状 (PSS)心理方面的心理方面.心理和体力问题罕见疾病中心 (RDC)主观疾病理论的主观疾病理论更多相关视频
08:33Author Spotlight: Methodologies and Advancements of Chronic Pain Management Research
Published on: January 5, 2024
1.1K
06:55An Unpredictable Chronic Mild Stress Protocol for Instigating Depressive Symptoms, Behavioral Changes and Negative Health Outcomes in Rodents
Published on: December 2, 2015
22.3K
相关概念视频
Theoretical Approaches to Psychological Disorder
56
The development of psychological disorders, which are characterized by deviant, maladaptive, and personally distressing behaviors, has been explored through several theoretical approaches.
Biological approach
The biological approach posits that internal, organic factors are the primary causes of such disorders. This perspective emphasizes brain structure and function, genetic predispositions, and neurotransmitter imbalances. For example, schizophrenia has been associated with both genetic...
Biological approach
The biological approach posits that internal, organic factors are the primary causes of such disorders. This perspective emphasizes brain structure and function, genetic predispositions, and neurotransmitter imbalances. For example, schizophrenia has been associated with both genetic...
56
Depressive Disorders: Etiology
22
Depressive disorders result from a complex interplay of biological, psychological, and sociocultural factors, each contributing uniquely to the development and persistence of the condition. Understanding these factors provides critical insight into the multifaceted nature of depression.
Biological Factors in Depression
Biological predispositions significantly influence the risk of developing depressive disorders. Genetic studies highlight the role of variations in the serotonin transporter...
Biological Factors in Depression
Biological predispositions significantly influence the risk of developing depressive disorders. Genetic studies highlight the role of variations in the serotonin transporter...
22
Factors Affecting Illness
4.0K
When a person's physical, emotional, intellectual, social development or spiritual functioning is compromised, this deviation from a healthy normal state is called illness. Illness creates stress that in turn harms individuals. Irritation, anger, denial, hopelessness, and fear are behavioral and emotional changes an individual experiences in the phases of illness. A variety of factors influence a person's health and well-being.
For instance, risk factors are connected to illness,...
For instance, risk factors are connected to illness,...
4.0K
Introduction to Psychological Disorders
40
Abnormal behavior, often referred to as mental illness, results from changes in brain function that influence thought patterns, behaviors, and social interactions. Psychologists and psychiatrists typically assess abnormal behavior using three primary criteria: deviance, maladaptation, and personal distress, particularly when these traits persist over long periods.
Deviant Behavior
Deviance in behavior refers to actions or thought patterns that significantly diverge from societal norms or...
Deviant Behavior
Deviance in behavior refers to actions or thought patterns that significantly diverge from societal norms or...
40
Panic Disorder
20
Panic disorder is an anxiety disorder characterized by recurrent and sudden minutes-long episodes of intense fear, known as panic attacks. These attacks may feel like heart attacks and often happen without warning or a specific cause. They can include symptoms such as rapid heart rate, shortness of breath, chest pain, trembling, sweating, dizziness, and a sense of helplessness. During a panic attack, individuals may feel as though they are experiencing a heart attack or are in a...
20
Chronic Obstructive Pulmonary Disease-IV: Assessement and Diagnostic Studies
2.5K
Assessing and diagnosing Chronic Obstructive Pulmonary Disease (COPD) involves a detailed approach that includes a comprehensive review of medical history, physical examination, and a variety of diagnostic tests. This thorough evaluation is essential to ensure an accurate diagnosis and guide effective management strategies.
Medical History
Medical History
2.5K
