癌症错过了,妇女被解雇,但仍然存在:在线论坛的自然语言处理
Kathleene T Ulanday1,2, Maxim Topaz3, Jeanette Shekelle1
1Columbia University Mailman School of Public Health, 722 West 168th Street, New York, NY, 10032, USA.
Breast cancer research : BCR
|May 13, 2025
概括
由于诊断延迟,年轻成年人往往会自我检测早期发病的乳腺癌. 幸存者强调自我倡导,以克服医疗保健系统的差距,并确保准确的诊断.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 患者倡导 患者倡导
背景情况:
- 早期乳腺癌 (EOBC) 不成比例地影响年轻成年人.
- 在EOBC的诊断延迟可能导致晚期诊断和更差的预后.
研究的目的:
- 为了确定早期乳腺癌检测的差距和延迟.
- 分析年轻人与诊断过程的第一手经验.
主要方法:
- 从一个在线乳腺癌论坛 (2009-2019) 中分析了571,914条帖子.
- 自然语言处理和定性内容分析来编码患者的体验.
- 专注于自我检测,诊断步骤,医疗互动和情绪影响.
主要成果:
- 81%的年轻人自行检测到他们的乳腺癌.
- 70%的患者因年龄不确定,成像不充分或活检错过而经历了诊断延迟.
- 心理健康和育儿压力加剧了延误.
结论:
- 解雇和诊断延迟会对EOBC预后产生负面影响.
- 需要改进早期检测策略,包括乳腺意识,先进成像 (MRI,超声波) 和及时活检.
- 对于年轻成年患者来说,社会医疗支持至关重要.
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