了解与HPV相关的癌症的披露决策和沟通:对耻辱和社会支持的定性探索
Seiichi Villalona1,2, Julian Sanchez3,4, Preeyapat Mangkalard5
1Department of Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA 19104, USA.
Healthcare (Basel, Switzerland)
|May 14, 2025
概括
患有人类乳头瘤病毒 (HPV) 相关癌症的个人在披露诊断时面临障碍和促进者. 了解耻辱是改善社会支持和解决心理社会困境的关键.
科学领域:
- 在瘤学瘤学.
- 心理学 心理学 心理学
- 沟通研究 沟通研究
背景情况:
- 人类乳头瘤病毒 (HPV) 相关的癌症存在独特的沟通挑战.
- 感知和内化耻辱显著影响人际交往的披露.
- 了解披露动态对于患者的福祉至关重要.
研究的目的:
- 探索与HPV相关的癌症患者自我披露的障碍和促进因素.
- 检查披露后的经历和耻辱的作用.
- 确定对加强社会支持的需求.
主要方法:
- 有关27个半结构面试的定性研究.
- 使用MAXQDA进行分析,以归因理论和披露模型为指导.
- 专注于HPV癌症患者的生活经历.
主要成果:
- 障碍包括隐私问题,担心负担他人,以及癌症位置的不适.
- 促进者包括寻求支持和积极披露来管理判断.
- 积极的披露是常见的,但内在的内和耻辱感仍然存在,特别是在少数群体中.
结论:
- 披露与HPV相关的癌症诊断是复杂的,受到污名的影响.
- 对这种患者群体来说,早期识别心理社会困境至关重要.
- 需要改进查和综合支持服务,以加强社会支持.
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