加强皮病学支持:评估患者对管理癌症治疗皮肤毒性的教育资源的利用率和满意度
Sabrina Saeed1, Tiffany X Chen2, Lenique Huggins2
1Yale School of Medicine, New Haven, CT, USA. sabrina.saeed@yale.edu.
Archives of dermatological research
|May 14, 2025
概括
癌症患者经常经历皮肤副作用 (皮肤毒性). 虽然大多数人获得了信息,但对教育资源的满意度很低,这表明需要改善患者支持和关于癌症治疗副作用的沟通.
科学领域:
- 在瘤学瘤学.
- 皮肤病学 皮肤病学
- 患者教育 患者教育
背景情况:
- 皮肤毒性是癌症治疗的常见和衰弱的副作用.
- 有效管理这些毒性对患者的生活质量和治疗坚持至关重要.
- 教育资源在赋予患者管理皮肤学不良事件 (DAE) 的能力方面发挥着关键作用.
研究的目的:
- 评估患者对癌症治疗相关皮肤毒性的教育资源的使用和满意度.
- 确定当前针对DAE的患者教育策略有效性的差距.
主要方法:
- 横截面调查研究设计.
- 收集关于患者对DAE的经验和对教育资源的使用/满意度的数据.
- 分析信息来源和满意度水平.
主要成果:
- 很高比例的患者 (86.5%) 经历了DAE,但只有77.5% 获得了关于管理它们的信息.
- 医疗保健提供者是信息的主要来源,其次是互联网搜索和社交媒体.
- 患者对教育资源的质量 (33.8%) 和数量 (31.3%) 的满意度较低.
结论:
- 在DAE的流行率和患者对教育资源的满意度之间存在很大的差距.
- 医疗保健专业人员提供的信息产生了最高的患者满意度.
- 建议将综合性皮肤学教育纳入癌症护理,以提高患者的结果和满意度.
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