青少年对敏感数据敏感吗? 探索学生对隐私,保密和健康研究数据使用的担忧
Emma Soneson1, Mina Fazel1, Puneetha S Goli2
1Department of Psychiatry, University of Oxford, Oxford, United Kingdom.
概括
青少年对健康数据隐私的担忧是常见的,并影响研究准确性. 解决这些问题对于改善涉及年轻人的研究数据质量和代表性至关重要.
科学领域:
- 青少年健康研究 青少年健康研究
- 数据隐私和保密性 数据隐私和保密性
- 心理测量 心理测量
背景情况:
- 青少年的隐私问题可能会影响他们愿意分享敏感的健康信息.
- 了解这些问题对于确保研究中自我报告数据的有效性至关重要.
- 以前的研究还没有完全量化这些担忧对数据准确性的影响.
研究的目的:
- 量化评估青少年对隐私,保密和健康研究中数据使用的担忧.
- 确定这些担忧对自我报告数据准确性的影响.
- 检查这些问题如何影响敏感指标的非响应和分数分布.
主要方法:
- 从17729名中学生 (2023年OxWell学生调查) 的数据分析.
- 评估了关于隐私,保密和数据使用的5个具体问题.
- 通过逻辑回归来检查关注,自我报告的不准确性,非响应和精神疾病和逆境措施的分数分布之间的关联.
主要成果:
- 46.0%的学生报告至少有一个问题; 29.2%的人报告了相关的不准确性.
- 与男孩相比,在性别多元的青少年,性别不披露的青少年和女孩中,担忧更为普遍.
- 自我报告的不准确性与不响应率的增加和敏感心理健康和逆境措施的得分分布的改变有关.
结论:
- 在青少年研究参与者中,对隐私,保密和数据使用的担忧很普遍.
- 这些问题通过影响不响应率和得分分布,显著影响数据质量.
- 共同设计解决这些问题的战略对于提高青少年健康研究的代表性和有效性至关重要.
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