卫生研究人员与患者合作伙伴合作的经验:一种定性研究
Magaly Brodeur1,2, Catherine Wilhelmy3, Denis Boutin3
1Department of Family Medicine and Emergency Medicine, Université de Sherbrooke, 12e Avenue Nord, Sherbrooke, Québec), 3001 J1H 5 N4, Canada. Magaly.Brodeur@USherbrooke.ca.
Research involvement and engagement
|May 15, 2025
概括
卫生研究人员在涉及患者合作伙伴 (PP) 参与研究时面临挑战,包括招聘和真正的参与问题. 了解这些复杂性是改善以患者为导向的研究合作的关键.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与研究.
背景情况:
- 面向患者的研究 (POR) 和患者参与 (PE) 在健康研究中越来越多地被采用.
- 虽然患者合作伙伴 (PP) 的障碍已知,但研究人员的经验仍未得到充分探索.
- 这项研究调查了卫生研究人员在与公共卫生人员合作时面临的挑战.
研究的目的:
- 了解卫生研究人员在与患者合作伙伴合作时遇到的挑战.
- 识别阻碍研究人员和公关人员之间有效合作的因素.
- 为改进 PPs 在研究中的整合策略提供信息.
主要方法:
- 质量描述性研究涉及20个半结构面试与卫生研究人员和协调员.
- 通过电子邮件,通讯和社交媒体从各种健康科学领域招募的参与者.
- 对采访成绩单进行主题分析,以确定关键主题和子主题.
主要成果:
- 出现了六个主要主题:与PP相关的挑战,制度障碍,真正参与的困难,协作问题,时间限制以及招聘/代表问题.
- 确定的挑战往往是相互关联和复杂的,相互影响.
- 研究人员在有效地整合PP时遇到多方面的困难.
结论:
- 这项研究提供了对健康研究人员与PPs面临的挑战的见解.
- 提供了关于当前实践,伦理和时间管理的建议,以加强PP参与.
- 解决这些相互关联的挑战对于有意义的以患者为导向的研究至关重要.
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