在自闭症研究中发现和解决研究,政策和实践之间缺失的联系:从早期自闭症查和干预研究中吸取教训
Giacomo Vivanti1, Anne M Roux1, Diana L Robins1
1A.J. Drexel Autism Institute, Drexel University, Philadelphia, Pennsylvania, USA.
概括
尽管自闭症研究越来越多,但在将发现应用到实践中仍然存在差距. 政策干预,包括立法和专业指导方针,对于改善早期自闭症检测和干预至关重要,有利于自闭症频谱中的个体.
科学领域:
- 自闭症谱系障碍 (ASD) 研究和临床实践.
- 卫生服务研究和政策实施科学.
背景情况:
- 20年来自闭症诊断和干预研究的显著增长.
- 研究结果,政策制定和临床实践之间存在持续的差距.
- 在美国,基于证据的自闭症查工具和干预措施未得到充分利用.
研究的目的:
- 检查自闭症诊断和干预方面的研究实践差距.
- 分析"大P" (立法,法规) 和"小P" (指南) 政策在弥合这些差距方面的作用.
- 应用探索,准备,实施,维持 (EPIS) 框架来了解这些差异.
主要方法:
- 对自闭症研究,政策和实践的现有文献的评论和分析.
- 探索,准备,实施,维持 (EPIS) 框架的应用.
- 关注宏观层面 (大P) 和微观层面 (小p) 政策的影响.
主要成果:
- 标准化的自闭症查工具被儿科医生所使用不足,尽管对早期诊断有已证明的好处.
- 自然主义的发育行为干预 (NDBI) 尽管有很强的证据,但在早期干预环境中很少使用.
- 政策包括政府和专业组织层面,在将研究转化为实践方面发挥着至关重要的作用.
结论:
- 解决发现的差距需要战略政策干预.
- 政策努力可以促进采用基于证据的自闭症实践.
- 通过政策弥合研究与实践之间的差距,可以提高早期发现和干预,改善自闭症患者的治疗结果.
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