一个混合方法的系统审查,评估儿童类风湿病的干预措施,以解决护理人员的支持和福祉问题
K Kupiec1,2, A Najafi3, J Ledochowski4
1Great Ormond Street Hospital NHS Foundation Trust, Great Ormond Street, London, WC1N 3JH, UK. k.kupiec@ucl.ac.uk.
Pediatric rheumatology online journal
|May 16, 2025
概括
照顾患有风湿病的儿童会对家庭产生影响. 这次审查发现,护理人员的干预措施很少,强调需要更多的研究来改善家庭福祉和生活质量.
科学领域:
- 类风湿病学 类风湿病学
- 儿科 儿科 儿科
- 心理学 心理学 心理学
背景情况:
- 儿科风湿病影响全球6-700万儿童,影响他们的心理社会福祉,生活质量和家庭动态.
- 这些慢性自身免疫和自身炎症性疾病主要影响儿童和年轻人的肌肉骨系统 (CYP).
- 该审查侧重于为患有这些疾病的CYP护理人员设计的干预措施.
研究的目的:
- 系统地审查旨在改善儿童和青少年 (CYP) 儿童类风湿病患者护理人员福祉的干预措施.
- 识别和评估现有的关于护理人员在这一群体中的干预措施的文献.
主要方法:
- 一个以PRISMA 2020声明为指导的系统审查,并与PROSPERO注册 (CRD42024524570).
- 纳入标准侧重于针对患有风湿病的CYP护理人员的研究,包括改善护理人员福祉的干预措施.
- 使用混合方法系统审查方法,用混合方法评估工具 (MMAT) 评估文献.
主要成果:
- 在1065项确定研究中,只有15项符合最终审查的纳入标准.
- 用叙事综合来评估护理人员干预措施,很大一部分文献缺乏报告的结果措施.
- 该审查包括定量,定性和混合方法研究,以及评论文章和摘要.
结论:
- 以家庭为中心的方法对于支持护理人员和CYP患有类风湿病至关重要,以提高健康结果和家庭功能.
- 目前实施的护理人员干预措施数量有限,尽管有证据支持它们的必要性.
- 需要进一步评估护理人员干预措施,以确定有效改善儿童慢性风湿病管理家庭生活质量的策略.
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