联邦卫生数据网络的障碍和促进因素:从北欧-波罗的海经验中吸取教训
Aleksandar Babic1, Alexandra Makhlysheva2, Laura-Maria Peltonen3
1Group Research and Development, DNV, 1322 Høvik, Norway.
Studies in health technology and informatics
|May 17, 2025
概括
建立跨境联合健康数据网络面临挑战. 本研究确定了激励和监管调整等关键促进因素,以及成功组建财团的隐私问题和技术基础设施等主要障碍.
科学领域:
- 医疗信息学 医疗信息学
- 数据科学数据科学数据科学
- 国际卫生政策 国际卫生政策
背景情况:
- 越来越多的人工智能 (AI) 和大数据的使用为跨境健康数据共享提供了潜力.
- 在国际上建立联合的健康数据网络带来了独特的机会和重大挑战.
- 早期识别障碍物和促进因素对于成功的网络发展至关重要.
研究的目的:
- 在建立北欧-波罗的海联邦健康数据网络的早期阶段记录和优先考虑障碍和促进者.
- 为未来跨境联合健康数据联盟提供实施前指导.
- 为克服国际卫生数据网络形成障碍的战略提供信息.
主要方法:
- 采用混合方法的方法来识别和优先考虑影响财团形成的因素.
- 收集和分析了定性和定量数据,以了解关键的驱动因素和障碍.
- 该研究的重点是北欧-波罗的海联邦卫生数据网络的技术前实施阶段.
主要成果:
- 确定了五个关键促进者集群,包括强烈的动机,跨学科的合作和监管调整.
- 确定了六个主要障碍集群,其中安全/隐私问题和技术基础设施挑战是最关键的.
- 障碍影响了人类协作和技术方面,突出了网络发展的双重性质.
结论:
- 了解和解决已识别的障碍和促进因素对于成功建立跨境联合健康数据网络至关重要.
- 从这项研究中得出的可行的策略可以加强对未来国际健康数据联盟的准备.
- 基于实施前的洞察力的积极规划可以减轻风险,加快全球健康数据网络的发展.
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