德国的PanCareSurPass项目:在德国的一个单一中心进行SurPass v2.0多国实施研究的当地发展
Anke Neumann1, Anna-Liesa Filbert2, Diana Walz3
1Institute of Medical Biometry and Statistics, Section for Clinical Research IT, University of Luebeck and University Hospital Schleswig-Holstein, Lübeck, Germany.
Studies in health technology and informatics
|May 17, 2025
概括
为儿童癌症幸存者提供标准化的长期随访护理至关重要. 本研究详细介绍了将幸存者护照整合到德国的医疗保健系统中,通过数据整合确保更好的护理.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 标准化的长期随访护理对于儿童癌症幸存者的福祉至关重要.
- 幸存者护照 (SurPass) 旨在整合治疗摘要和个性化护理计划.
- 国际准则是SurPass建议的基础.
研究的目的:
- 将"幸存者护照"纳入德国医疗保健系统.
- 从临床系统到幸存者护照平台建立数据流.
- 促进为患者数据创建FHIR资源.
主要方法:
- 使用PanCareSurPass项目框架进行数据映射.
- 开发了一个用于数据传输的提取,转换,加载 (ETL) 过程.
- 从人口统计,诊断和治疗来源转移验证的患者数据.
主要成果:
- 成功地将来自临床试验管理系统的数据映射到SurPass配置文件.
- 向幸存者护照平台展示了一个功能数据流.
- 确认成功转移患者数据,以提供全面的后续护理.
结论:
- 将幸存者护照整合到德国医疗保健系统是可行的.
- 标准化数据传输对于儿童癌症幸存者的有效长期随访护理至关重要.
- 医疗保健提供者和登记处之间的协作提高了幸存者护理的提供.
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