FHIRPhenopacketsRareLink:REDCap,

概括

RareLink是一个开源框架,通过从REDCap到全球卫生标准进行标准化数据交换来增强罕见疾病研究. 这提高了数据的互操作性,并通过先进的分析支持更好的患者护理.

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