利用众包,在开发糖尿病应急干预时,纳入家庭的声音
Nicole A Kahhan1, Susana R Patton1, Amy I Milkes1
1Nemours Children's Health-Jacksonville, Jacksonville, FL.
概括
众包吸引了家长设计1型糖尿病干预措施,捕捉了他们宝贵的见解,以补救糖尿病痛苦 (R2D2). 这种方法确保了干预解决了真正的家庭需求和糖尿病困境的情感负担.
科学领域:
- 心理学 心理学 心理学
- 儿科 儿科 儿科
- 医疗保健服务研究 医疗服务研究
背景情况:
- 糖尿病困扰 (DD) 显著影响管理1型糖尿病 (T1D) 的家庭.
- 现有的干预措施可能无法完全捕捉父母的生活经历.
- 治疗糖尿病困扰 (R2D2) 干预措施是为了弥补这个差距而开发的.
研究的目的:
- 使用众包来设计R2D2干预.
- 将家长利益相关者的声音纳入干预开发中.
- 为了捕捉父母照顾T1D儿童的情感经历.
主要方法:
- 招募了41名患有T1D的8-12岁儿童的父母.
- 采用安全的在线社交网络进行代的家长反.
- 使用定性编码来分析父响应和主题.
主要成果:
- 在定性类别上达成实质性协议 (κ = 0.615).
- 父母提供了关于干预语言,语气和特定组件的反.
- 寻找好处和积极的自我对话被确定为包容性的关键因素.
结论:
- 众包有效地捕捉了T1D干预设计的家长观点.
- 在R2D2干预开发中,优先考虑了家庭的声音.
- 未来的研究包括预试验和概念验证RCT,以评估R2D2的可行性和可接受性.
相关概念视频
Community Based Intervention
27
Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
27
SBAR II: Application of SBAR
4.3K
SBAR is an effective communication tool used by healthcare professionals to communicate patient information accurately. SBAR stands for Situation, Background, Assessment, and Recommendation. For a better understanding, an example is given below.
SBAR Report from a Nurse to a Health Care Provider
S: "Hello, Dr. Smith. This is Jane, RN, from the Med Surg unit. I am calling to tell you about Ms. White in Room 210, who is experiencing increased pain and redness at her incision site. Her recent...
SBAR Report from a Nurse to a Health Care Provider
S: "Hello, Dr. Smith. This is Jane, RN, from the Med Surg unit. I am calling to tell you about Ms. White in Room 210, who is experiencing increased pain and redness at her incision site. Her recent...
4.3K
Techniques of Therapeutic Communication II: Focusing, Paraphrasing, and Summarizing
7.7K
Focusing involves centering a conversation on a message's critical elements or concepts. Focusing is valuable if the talk is vague or patients begin to repeat themselves. Sometimes, when patients are asked about their symptoms, they may go off-topic and try to tell their entire life story. Respectfully, the nurse should bring the conversation back into focus.
This therapeutic technique can also be used when a patient brings up pertinent information during a health-related conversation. The...
This therapeutic technique can also be used when a patient brings up pertinent information during a health-related conversation. The...
7.7K
Role of Communication in the Nursing Process II: Planning and Implementation
1.8K
Several factors are considered while creating a patient's care plan. Motivation is a factor in improving communication, and patients often require encouragement to try different approaches involving significant change. It is essential to involve the patient and family in decisions about the plan of care to determine whether the suggested methods are acceptable. Consider meeting critical comfort and safety needs before introducing new communication methods and techniques. Allow adequate time...
1.8K
Family Therapy
30
Family therapy conceptualizes psychological challenges as arising from dysfunctional interactions within the family unit, rather than as isolated issues within individuals. This approach seeks to address and transform the patterns of communication, roles, and relationships within families to promote healthier dynamics and emotional well-being for all members.
Strategic Family Therapy
Strategic family therapy emphasizes resolving communication barriers and improving problem-solving abilities...
Strategic Family Therapy
Strategic family therapy emphasizes resolving communication barriers and improving problem-solving abilities...
30


