在医疗机构的非遗传学医生中试点一个关于同意外体测序的教育模块
Amanda K Chan1,2,3,4,5, Kelsie Bogyo1,2,3,4,5, Alexa R Geltzeiler1,2,3,4,5
1Ms. Chan: Genetic Counselor, Department of Neurology, Taub Institute for Research, Columbia University, New York, NY.
概括
非遗传学专业的医生对外基因组测序的了解很少. 一个教育模块改善了他们的理解,强调了需要针对性培训的遗传测试同意.
科学领域:
- 遗传学 是一个遗传学.
- 医学教育 医学教育
背景情况:
- 外体序列测序 (ES) 越来越多地用于缺少遗传学提供者的分专科诊所.
- 非遗传学医生 (NGP) 现在负责促进患者对ES的同意.
- 非政府组织对ES的基本同意要素的理解仍未得到充分研究.
研究的目的:
- 评估NGP对外基因组测序的同意要素 (CK) 的当前知识.
- 评估教育模块在提高非政府组织对ES的CK方面的有效性.
主要方法:
- 一个模块前调查 (PrS) 评估了哥伦比亚大学NGP中的CK.
- 非政府组织获得了关于ES的教育模块.
- 一个月后进行的模块后调查 (PoS) 测量了CK分数的变化.
主要成果:
- 19个NGP完成了这两项调查;最初的CK得分很低 (平均值=8,SD 1.6).
- 在临床医生和住院医生/研究员之间没有发现PrS CK分数的显著差异,分数也与医学院毕业以来的岁月无关.
- PoS CK分数明显高于PrS CK分数 (P = .03),有74%的NGP对教育模块感到满意.
结论:
- 显然需要对初级和高级NGP进行持续的教育,以了解对外基因组测序同意的最佳做法.
- 一个量身定制的在线教育模块提供了一种潜在的有效方法,可以在不同的医学专业中提供这一关键培训.
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