对于患有多发性硬化症的患者来说,什么才是重要的? 识别患者相关的属性,使用排名练习,从意大利的在线调查中获得开放式答案
Karin Schölin Bywall1,2, Ulrik Kihlbom3, Jennifer Viberg Johansson2,4
1Department of Public Health Sciences, Mälardalen University, Vasteras, Sweden karin.bywall@crb.uu.se.
BMJ open
|May 23, 2025
概括
新确诊的多发性硬化症 (MS) 患者优先考虑疾病修饰治疗,心理健康支持和认知功能保护. 了解这些患者偏好对于个性化MS护理和改善结果至关重要.
科学领域:
- 神经学 神经学
- 临床研究 临床研究
- 以患者为中心的护理
背景情况:
- 多发性硬化症 (MS) 管理需要了解患者的优先事项,以获得有效的个性化护理.
- 新确诊的多发性硬化症患者面临复杂的治疗决策,需要关注他们的偏好.
研究的目的:
- 确定新诊断的多发性硬化症 (MS) 患者所评价的干预特征和属性.
- 探索患者在多发性硬化症治疗和护理方面的偏好的根本原因.
主要方法:
- 系统的文献审查以确定关键属性.
- 针对多发性硬化症患者的在线调查,包括排名练习和开放式问题.
- 临床团队对患者优先考虑的因素进行评估,以获得个性化护理.
主要成果:
- 疾病修饰治疗,个人心理治疗和认知功能保护是排名最高的属性.
- 临床检查和混合监测模式是管理MS的首选方法.
- 患者的合理性强调保持移动性,认知功能和情感福祉.
结论:
- 将多发性硬化症的治疗选择与患者的偏好结合起来,对于有效的管理至关重要.
- 优先考虑患者识别的属性支持更以患者为中心的MS护理方法.
- 需要进一步进行定量评估,以完善个性化预防性多发性硬化症护理策略.
相关概念视频
02:16Surveys
14.4K
Often, psychologists develop surveys as a means of gathering data. Surveys are lists of questions to be answered by research participants, and can be delivered as paper-and-pencil questionnaires, administered electronically, or conducted verbally. Generally, the survey itself can be completed in a short time, and the ease of administering a survey makes it easy to collect data from a large number of people.
14.4K
01:23Assessment of the Cardiovascular System I: Subjective Data
1.0K
A thorough health history and physical assessment are essential for identifying cardiovascular disease (CVD) symptoms and distinguishing them from other health issues.
Initial Enquiry
Ask the patient about their primary concern and thoroughly explore all reported symptoms.
Medical History
Investigate past illnesses affecting the cardiovascular system, such as angina, anemia, rheumatic fever, congenital heart disease, stroke, thrombophlebitis, dysrhythmias, varicosities
Inquire about symptoms...
Initial Enquiry
Ask the patient about their primary concern and thoroughly explore all reported symptoms.
Medical History
Investigate past illnesses affecting the cardiovascular system, such as angina, anemia, rheumatic fever, congenital heart disease, stroke, thrombophlebitis, dysrhythmias, varicosities
Inquire about symptoms...
1.0K
01:19Multiple Sclerosis l: Introduction
31
Multiple sclerosis is a chronic autoimmune disease of the central nervous system (CNS) that affects the brain, spinal cord, and optic nerves. It is an inflammatory demyelinating disorder and a leading cause of neurological disability in young adults.EpidemiologyMS commonly begins between 20 and 40 years of age and is twice as common in women. Its exact cause remains unclear, but genetic susceptibility contributes, with higher risk in first-degree relatives and identical twins. A greater...
31