为实施工作场所遗传检测实施关键特征的多学科利益相关者知情的识别
Elizabeth Charnysh1, Kunal Sanghavi1, Kerry A Ryan2
1The Jackson Laboratory for Genomic Medicine, Farmington, CT, USA.
HGG advances
|May 24, 2025
概括
工作场所基因测试 (wGT) 提供了潜在的好处,但需要仔细实施. 隐私,透明度和反歧视等关键特征对于员工安全和对这些雇主赞助计划的信任至关重要.
科学领域:
- 职业健康 职业健康 职业健康
- 生物伦理学生物伦理学
- 基因咨询 基因咨询
背景情况:
- 工作场所基因测试 (wGT) 正在出现,通过雇主健康计划提供基因测试.
- 对 wGT 实施的潜在危害,益处和最佳实践仍未确定.
研究的目的:
- 定义安全和有效的工作场所遗传测试实施的关键特征.
- 收集来自各种wGT利益相关者的观点.
主要方法:
- 采用了经过三轮修改的Delphi过程.
- 包括调查和与各种wGT利益相关者的虚拟研讨会.
主要成果:
- 确定了wGT实施的12个关键特征,平衡好处和风险.
- 对隐私,透明度,自愿性,教育,反歧视,员工控制和基于证据的测试的重要性达成高度一致.
- 一些利益相关者对实现这些特征缺乏信心.
结论:
- 利益相关者对wGT表示有条件的支持,但前提是满足确定的主要特征.
- 研究结果为评估工作场所遗传检测计划提供了规范框架.
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