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评估现实世界实施的基于网络的患者教育工具,用于消化不良患者:一个纵向调查研究
Daniëlle Kroon1, Simone A van Dulmen1, Marten A Lantinga2
1IQ Health science department, Radboud University Medical Center, Nijmegen, the Netherlands.
Patient education and counseling
|May 28, 2025
概括
基于网络的工具可以让功能性消化不良患者放心,支持生活方式的改变和明智的医疗决策. 这种可访问,低成本的工具鼓励自我管理,以获得更好的健康结果.
科学领域:
- 胃肠病学 胃肠病学
- 数字健康数字健康
- 患者教育 患者教育
背景情况:
- 功能性消化不良 (FD) 是一种常见的胃肠道疾病.
- 有效的患者自我管理和知情决策对于管理FD至关重要.
- 基于Web的工具为患者教育和支持提供了可扩展的解决方案.
研究的目的:
- 评估一个现实世界的基于网络的患者教育工具,用于功能性消化不良.
- 评估该工具在支持自我管理和知情决策方面的潜力.
- 探索患者的安慰和医疗护理寻求行为的变化.
主要方法:
- 在荷兰进行的一项基于网络的研究 (2022年7月至2023年10月).
- 两个在线问卷:一个在工具使用后立即,一个在三个月后续.
- 胃肠道疾病患者评估症状严重性指数 (PAGI-SYM) 被翻译成荷兰语.
主要成果:
- 90名参与者完成了这项研究.
- 60%的人表示感到放心;少数人改变了寻求医疗护理的意图.
- 最受欢迎的建议包括饮食改变 (83%),减少压力 (70%),以及体力活动 (62%).
- 50%-77%的参与者可能会尝试建议的生活方式改变.
- 自我报告的生活方式改变的成功率在三个月后从38%到100%不等.
结论:
- 基于网络的患者教育可以让功能性消化不良患者放心.
- 该工具支持生活方式的修改和关于寻求医疗护理的知情决策.
- 该工具是公开的,廉价的,并且需要最小的维护,倡导其实施.
- 荷兰版的PAGI-SYM已被验证用于评估荷兰语人口的症状严重程度.
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