收集患者报告结果的可行性和可接受性 在常规儿科亚托皮肤炎护理中
Hannah R Chang1,2, Hsing-Jou Su2, Karin Kartawira2
1University of Texas Southwestern Medical School, University of Texas Southwestern Medical Center, Dallas, Texas, USA.
Pediatric dermatology
|May 31, 2025
概括
在儿科亚托皮性皮肤炎 (AD) 护理中收集患者报告的结果 (PRO) 是可行的和可以接受的. 这种方法可以增强对孩子的理解.
科学领域:
- 皮肤病学 皮肤病学
- 儿科 儿科 儿科
- 健康 结果 研究 研究 结果
背景情况:
- 亚托皮炎 (AD) 是一种普遍的慢性皮肤疾病,影响儿童的身体,精神和社会福祉.
- 临床医师的评估可能无法完全捕捉到患者对阿尔茨海默病的实践经验.
- 患者报告结果 (PROs) 对于全面了解AD对儿童及其照顾者的影响至关重要.
研究的目的:
- 评估在常规儿科阿托皮性皮肤炎护理期间收集PRO的可行性和可接受性.
- 评估PROs在了解AD患者和护理人员经验方面的实用性.
主要方法:
- 试点研究涉及153名被诊断患有亚托皮性皮肤炎的儿童.
- 在标准儿科临床访问期间收集患者报告的结果.
主要成果:
- 在儿科阿尔茨海默症护理中收集PRO被发现既可行又可接受.
- 该研究证明了将PRO收集集成到常规临床工作流程中的实用性.
结论:
- 在儿科阿托皮性皮肤炎护理中实施PRO是一种可行的策略.
- PROs支持以患者为中心的护理和共同决策,以管理儿童AD.
- 未来的努力应集中在更广泛地在临床实践中实施PROs来管理AD.
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