以患者为中心的,基于理论的,在线干预,以促进多发性硬化症患者的身体活动生活方式:随机对照试验的协议
Chungyi Chiu1, Vaishnavi Sridharan1, Mojtaba Khaliji1
1Department of Health and Kinesiology, University of Illinois Urbana-Champaign, Urbana, IL, United States.
JMIR research protocols
|June 2, 2025
概括
本研究测试了一项在线计划,以帮助患有多发性硬化症 (MS) 的患者使用健康行动过程方法 (HAPA) 增加体力活动 (PA). 结果将为MS的未来自我管理和远程康复干预提供信息.
科学领域:
- 神经学 神经学
- 康复科学 康复科学 康复科学
- 行为科学 行为科学
背景情况:
- 多发性硬化症 (MS) 通常导致久坐不动的生活方式,阻碍症状和复发管理.
- 尽管已知有好处,但患有多发性硬化症的人经常不符合体力活动 (PA) 准则.
- 这种差距凸显了需要有效的干预措施,以促进MS人口的活跃生活方式.
研究的目的:
- 评估联合开发的在线自我管理干预措施在MS患者增加体力活动的初步有效性.
- 这项干预基于健康行动流程方法 (HAPA),适应MS群体.
- 通过结构化,可访问的在线计划,在MS患者中培养身体活跃的生活方式.
主要方法:
- 一个为期8周的在线干预,使用基于社区的参与性研究和HAPA框架.
- 该计划的组成部分包括PA意识,好处,动机,支持,目标设定,规划和障碍管理.
- 参与者 (目标60人) 被随机分配到干预或等候名单对照组,在基线,干预后和3,6和12个月进行评估.
主要成果:
- 招募于2023年2月开始,招募了50名参与者 (25名干预,25名控制).
- 参与者中断率很低 (干预组3名,控制组4名).
- 数据收集正在进行中,将于2025年12月结束,预计2026年1月获得结果.
结论:
- 该研究将评估基于证据的在线干预措施对MS患者身体活动的自我管理的有效性.
- 结果将为设计基于社区的参与性研究提供有价值的见解.
- 结果将为针对MS患者量身定制的远程康复干预措施的实施提供信息.
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