照顾患有自闭症谱系障碍的孩子:一个比喻研究
Betul Uncu1, Ayse Irem Gokcek2, Nehir Aras3
1Department of Midwifery, Health Sciences Faculty, Istanbul University-Cerrahpaşa, Istanbul, Türkiye. betul.uncu@iuc.edu.tr.
Maternal and child health journal
|June 4, 2025
概括
照顾自闭症谱系障碍 (ASD) 儿童的母亲使用十种不同的隐喻来描述他们的旅程. 了解这些隐喻为医疗保健专业人员,包括助产士提供了宝贵的见解,以更好地支持这些家庭.
科学领域:
- 定性研究是一种定性研究.
- 现象学的现象学
- 语言分析语言分析.
背景情况:
- 自闭症谱系障碍 (ASD) 为家庭带来了独特的挑战.
- 母亲在照顾患有自闭症儿童的经历需要更深入的理解.
- 隐喻语言为主观经验提供了丰富的镜头.
研究的目的:
- 探索母亲在描述照顾自闭症儿童的经历时所使用的比喻语言.
- 为助产士和临床医生提供有关母亲患有自闭症的经验的更深入的见解.
主要方法:
- 采用现象学方法的前性定性研究.
- 与11名参与者进行了半结构化的深度访谈和观察.
- 在2024年1月至5月期间收集的数据,直到数据和为止.
主要成果:
- 从母亲们对照顾患有自闭症儿童的描述中,发现了十种不同的隐喻.
- 隐喻包括:宝藏,迷宫,乘船旅行,纠的结,新发现的行星,迟到的承载树,山顶,新的一天,外星人,和新发芽的花.
- 这些比喻凸显了母亲的护理经验的复杂性和多方面的性质.
结论:
- 母亲的比喻为患有自闭症儿童的护理经验提供了深刻的见解.
- 临床医生,特别是助产士,可以利用这种理解来改善与母亲的支持和沟通.
- 承认和解释这些比喻可以增强对家庭导航自闭症的同情照顾.
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