在对自闭症成年人服务的评估中使用的高优先级结果的共识:来自"CBPR嵌入的Delphi过程"的结果
Christina Nicolaidis1,2,3, Mirah Scharer1,3, Dora M Raymaker1,3
1Portland State University, USA.
概括
这项研究确定了评估自闭症成年人服务的关键结果,强调需要共同开发的测量工具. 这些发现指导研究人员和提供者评估改善生活质量的干预有效性.
科学领域:
- 自闭症谱系障碍研究研究
- 医疗保健服务研究 医疗服务研究
- 基于社区的参与式研究
背景情况:
- 越来越多的人认识到,需要为自闭症成年人提供有效的服务干预.
- 对这些服务的适当评估方法的理解有限.
- 调整服务评估与自闭症社区优先事项的重要性.
研究的目的:
- 确定关键的自我报告结果,以评估针对自闭症成年人的服务.
- 确定适合的调查工具来测量这些已识别的结果.
- 确保评估方法与自闭症成年人相关且可接受.
主要方法:
- 利用"CBPR嵌套的Delphi过程",将传统的Delphi方法集成到基于社区的参与性研究中.
- 在53位不同专家之间达成共识,包括自闭症成年人,家庭成员,服务提供商和研究人员.
- 系统地收集和综合有关结果重要性和测量的专家意见.
主要成果:
- 在包括生活质量,心理健康,社会支持和日常生活在内的15个关键结果的综合清单上达成共识.
- 专家表示,大多数现有的测量仪器需要适应用于自闭症成年人.
- 强调需要与自闭症患者共同开发工具.
结论:
- 研究人员和服务提供者应优先考虑针对确定关键结果的干预措施.
- 对自闭症成年人服务的评估应采用与自闭症社区共同开发的测量工具.
- 适应现有的工具或开发新的工具对于准确和有意义的评估至关重要.
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