一种社区参与的方法来开发共同的数据元素:来自RADx-UP长COVID共同数据元素工作组的案例研究
Helena L Pike Welch1, Gregory Guest2, Halima Garba1
1Duke Clinical Research Institute, Duke University School of Medicine, Durham, NC 27701, United States.
JAMIA open
|June 5, 2025
概括
一个长期COVID常见数据元素 (CDEs) 工作组,包括社区合作伙伴,为社区参与的研究开发了28个CDEs. 这确保了长期COVID研究数据准确地反映了社区的需求.
科学领域:
- 公共卫生研究 公共卫生研究
- 数据标准化数据标准化
- 社区参与 社区参与
背景情况:
- 诊断服务不足人群的快速加速 (RADx-UP) 计划旨在将长期COVID常见数据元素 (CDE) 集成到现有的数据收集协议中.
- 来自社区参与的研究项目的请求强调了对长期COVID特有的CDE的需求.
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