被转移到儿科息护理的青少年的临床异质性;一个定量观察性研究
Hannah Linane1,2, John Allen1,3,4, Mary Devins1,4,5
1Children's Health Ireland, Dublin, Ireland.
概括
患有生命限制疾病的青少年经历了显著的症状负担,需要尽早获得专业的息治疗. 这项研究强调了为这个弱势群体提供量身定制的心理支持的必要性.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 青少年健康 青少年健康
- 在瘤学瘤学.
背景情况:
- 患有生命限制疾病的青少年有独特的息护理需求,与儿童和成年人不同.
- 有限的研究存在,专门针对这个年龄组的息护理需求.
- 了解它们的特征对于开发有针对性的干预措施至关重要.
研究的目的:
- 描述2019年至2022年期间在爱尔兰共和国接受专业息护理的青少年 (13-18岁).
- 在这个群体中确定人口统计和诊断资料.
- 描述症状的流行程度和护理需求.
主要方法:
- 从国家儿科息护理中心和辐射瘤学网络的医疗记录进行了回顾性分析.
- 包括所有与专业儿科息护理相关的青少年 (13-18岁) 在全国范围内.
- 数据收集范围从2019年到2022年.
主要成果:
- 确定了145名青少年,58%患有癌症,60%患有非癌症诊断 (包括严重的神经功能障碍).
- 在所有群体中,身体症状的高患病率;在近一半的癌症患者中发现了心理症状.
- 许多患有严重神经障碍的人需要家庭医疗技术 (例如,食,呼吸支持).
- 在研究结束时,47.6%的青少年死亡,其中大多数在家中死亡.
结论:
- 息治疗中的青少年面临着相当大的症状负担,这强调了早期干预的必要性.
- 专门的息护理专业人员需要特定的技能来满足青少年的需求.
- 对这一群体来说,平等地获得高质量的心理支持至关重要.
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