通过PROMIS®计算机化适应性测试,测量患有外围血管形的患者的与健康相关的生活质量
Delano J de Oliveira Marreiros1, Max M Lokhorst1, Danny A Young-Afat1
1Department of Plastic, Reconstructive and Hand Surgery, Amsterdam University Medical Centers, Amsterdam, the Netherlands.
概括
患者报告结果测量信息系统 (PROMIS) 计算机化适应性测试 (CATs) 可靠地测量血管形成人与健康相关的生活质量. 这项研究为这种罕见疾病群体建立了关键的参考值.
科学领域:
- 医学评估 医学评估
- 罕见疾病研究 罕见疾病研究
- 衡量生活质量 衡量生活质量
背景情况:
- 患者报告结果测量信息系统 (PROMIS) 推计算机化适应性测试 (CAT) 用于评估罕见疾病中与健康有关的生活质量 (HRQoL).
- 血管形代表了一组罕见疾病,其中HRQoL评估至关重要.
研究的目的:
- 评估PROMIS CATs用于测量血管形成人核心HRQoL域的可靠性.
- 为了在这个特定的患者群体中确定PROMIS猫的规范性参考值.
主要方法:
- 一项前性队列研究,涉及患有血管形的成年患者.
- 患者完成了针对疼痛干扰,身体功能,焦虑,抑郁,社会角色参与和疼痛强度的PROMIS CAT,并进行了为期7天的可靠性评估.
- 使用类内相关系数 (ICC),标准测量误差 (SEM) 和最小可检测变化 (SDC) 确定了测试-重试可靠性.
主要成果:
- 123名患者完成了至少一个CAT,其中55人完成了重复测试.
- 所有的ICC都超过了0.85,SEM低于5分,SDC约为10分,证实了足够的测试重复测试可靠性.
- 与荷兰普通人口相比,血管形患者的HRQoL平均得分处于正常范围内.
结论:
- 普罗米斯猫可以在患有血管形的成年人中可靠地测量身体,精神和社会HRQoL.
- 这项研究成功地确定了被诊断患有血管形的成年人中PROMIS猫的参考值.
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