ePOWER干预的可接受性:管理幸存者与癌症相关的不确定性,并支持决策
Marleah Dean1,2, Bethany Jowers1, Claire Conley3
1Department of Communication, University of South Florida, Tampa, FL, USA.
PEC innovation
|June 9, 2025
概括
ePOWER干预措施对BRCA1/2先前幸存者是可以接受的,有效地管理与癌症相关的不确定性并支持健康决策. 这使得患有遗传癌症风险的妇女能够驾自己的旅程.
科学领域:
- 遗传学和基因组学 在
- 预防癌症 预防癌症
- 健康心理学 心理健康心理学
背景情况:
- 具有致病性或可能致病性变异的个体 (幸存者) 面临着与癌症相关的重大不确定性.
- 这种不确定性与不良的心理和健康结果有关.
- 幸存者需要量身定制的干预措施来管理风险和支持决策.
研究的目的:
- 评估ePOWER (赋权妇女经历风险的预防选择) 干预措施的可接受性.
- 为了评估ePOWER适用于BRCA1/2前存活者在管理与癌症相关的不确定性.
- 确定ePOWER是否有助于幸存者做出明智的健康决策.
主要方法:
- 在24名幸存者中采用混合方法方法.
- 通过治疗可接受性和偏好量表 (TAPS) 收集的定量数据.
- 通过使用学习者验证和修订 (LV&R) 方法的半结构面试收集的定性数据,通过演和归纳编码进行分析.
主要成果:
- ePOWER干预证明了足够的可接受性,88%的参与者超过了TAPS值 (≥3).
- LV&R编码证实ePOWER在视觉上具有吸引力,易于理解,有说服力,文化上合适,并促进了自我效能.
- 主题分析揭示了相关性,情感支持和作为资源的有用性等主题.
结论:
- 对于BRCA1/2的幸存者来说,ePOWER干预是一个可接受和有价值的工具.
- ePOWER有效地帮助癌症幸存者管理与癌症相关的不确定性,并促进明智的健康决策.
- 这种干预可以整合到医疗保健机构中,并由先前幸存者持续使用.
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