相关实验视频

Updated: Jun 12, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

对于ALS患者的辅助设备:通过重点小组探索愿望和价值观

Hein J Lucassen^1,2, Erik C Prinsen^1,3, Malte Asseln¹

¹Department of Biomechanical Engineering, University of Twente, Enschede, The Netherlands.

Disability and rehabilitation. Assistive technology

|June 10, 2025

概括

肌缩侧面硬化症 (ALS) 患者的辅助设备应根据他们的需求量身定制,专注于日常生活和爱好. 这确保了 ALS 患者更大的独立性和更好的生活质量.

科学领域:

神经学神经学
康复工程康复工程康复工程
人类因素工程人类因素工程

背景情况:

肌缩侧面硬化症 (ALS) 逐渐损害肌肉力量和控制,减少患者的独立性.
目前用于ALS患者的辅助设备的采用率有限.
根据特定患者需求量身定制设备对于增加其使用量至关重要.

研究的目的:

确定ALS患者关于上肢辅助设备的愿望,要求和价值观.
为设计辅助技术提供信息,以更好地满足ALS患者的需求.

主要方法:

与ALS患者,亲属和医疗专业人员进行了四个重点小组.
使用了"生活中的一天"",同情地图"和"挑陈述"的方法.
为了分析,将上述活动分为"日常活动"和"选择性活动".

主要成果:

确定了三个关键主题:患者的考虑,外部影响因素和不断变化的需求.
强调支持日常生活和可选活动 (例如爱好) 的重要性.
确认需要专门的辅助设备,用于ALS患者的上肢虚弱,而不是轮椅.

结论:

这些发现为开发专门为ALS患者量身定制的辅助设备提供了指导.
强调了以用户为中心的设计在神经退行性疾病的辅助技术的重要性.

关键词:

辅助设备辅助设备辅助设备日常生活中的日常活动.骨髓缩侧面硬化症 (ALS) 是一种设计要求设计要求运动神经元疾病运动神经元疾病在上肢的上端.

更多相关视频

A Protocol for Comprehensive Assessment of Bulbar Dysfunction in Amyotrophic Lateral Sclerosis ALS

A Protocol for Comprehensive Assessment of Bulbar Dysfunction in Amyotrophic Lateral Sclerosis ALS

Published on: February 21, 2011

A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research

A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research

Published on: July 31, 2017

相关概念视频

Autism Spectrum Disorder

Autism Spectrum Disorder

Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.

Modeling in Therapy

Modeling in Therapy

Modeling, a key technique in therapy, uses observational learning to help clients acquire and practice new skills by watching therapists demonstrate desired behaviors. This approach, rooted in Albert Bandura's concept of vicarious learning, plays a significant role in therapeutic interventions for various psychological conditions, including social anxiety, ADHD, and depression.
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...