在加拿大中部经历社区过渡的智力和发育残疾人的生活质量轨迹:一项纵向重复测量研究
Margherita Cameranesi1, Kayla Kostal2, Brenden Dufault3
1Department of Psychology, Saint Mary's University, Halifax, NS, Canada.
Research in developmental disabilities
|June 10, 2025
概括
分散的社区生活最初改善了智力和发育障碍的成年人的生活质量 (QoL),但在四年内,收益下降了. 持续的改进在个体上有所不同,这凸显了持续支持的必要性.
科学领域:
- 关于残疾人的研究.
- 医疗保健服务研究 医疗服务研究
- 健康的社会决定因素
背景情况:
- 与集体护理相比,分散的社区生活与智力和发育障碍 (IDD) 患者的生活质量 (QoL) 的提高有关.
- 对于IDD群体的社区环境中,长期的QoL稳定性和特定域的好处需要进一步调查.
研究的目的:
- 检查加拿大成年人患有严重到严重的IDD从机构过渡到社区生活的四年内QOL轨迹.
- 评估多个领域的QoL变化,并确定个别变化模式.
主要方法:
- 采用了一种准实验性的,重复测量时间序列研究设计.
- 在四个波段 (2019-2022) 收集了来自59名IDD参与者的数据,使用代理报告圣马丁尺度.
- 线性混合效应模型用于个人和聚合数据分析.
主要成果:
- 随着时间的推移,平均QOL得分发生了显著的变化,在第一次过渡后评估时达到顶峰,然后下降.
- 全球QOL遵循了类似的模式,一些域显示出独特的时间变化.
- 个别的QoL轨迹显示出很高的变化,一些参与者经历了持续的好处,而另一些人只经历了暂时的改善.
结论:
- 虽然最初的过渡到社区生活显示了QoL的好处,但持续的改进需要持续支持和关注特定的QoL领域.
- 一个强调公平,包容和福祉的社会正义框架对于促进IDD个体的QoL至关重要.
相关概念视频
Intellectual Disability
44
Intellectual disability (ID) is a neurodevelopmental condition characterized by deficits in intellectual and adaptive functioning that manifest during the developmental period. This condition encompasses challenges in reasoning, memory, problem-solving, and learning, accompanied by impairments in everyday life skills, such as communication, self-care, and social interactions. Intellectual disability affects approximately 1% of the population in the United States, impacting an estimated 5...
44
Continuing Care
1.4K
Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
1.4K
Learning Disabilities
86
Learning disabilities are cognitive disorders caused by neurological impairments that affect cognitive functions like language and reading, without indicating overall intellectual or developmental challenges. These disabilities differ from global intellectual or developmental disabilities as they are limited to distinct cognitive functions. Common learning disabilities include dysgraphia, dyslexia, and dyscalculia, each of which impacts unique aspects of learning.
Dyslexia
Dyslexia is a...
Dyslexia
Dyslexia is a...
86
Specialized Care Centers and Settings-II
717
Rural Health Centers
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
717
Community Based Intervention
36
Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
36
Dimensions of Health and Illness
7.2K
The factors influencing the health-illness continuum can be internal or external and may or may not be under conscious control. They are related to the following eight human dimensions, and each dimension is interrelated to one other.
7.2K


