构建面向患者的技术:基于REDCap的方法
Yuheng Shi1, Eric Yang1, Katie Gahn2
1McWilliams School of Biomedical Informatics, The University of Texas Health Science Center at Houston, Houston, TX, United States.
这项研究详细介绍了一种使用REDCap的面向患者的技术 (PFT),以帮助癌症患者在护理过渡期间管理药物和症状. 患者参与指导了赋权,个性化的自我跟踪工具的设计.
科学领域:
- 医疗信息学 医疗信息学
- 数字健康数字健康
- 患者赋权是患者赋权的一种方式.
背景情况:
- 对癌症患者来说,护理的转变给治疗药物和症状带来了挑战.
- 现有的工具可能无法在这些关键时期充分支持患者的自我跟踪和参与.
研究的目的:
- 描述患者面向技术 (PFT) 的架构设计,用于癌症患者的自我管理.
- 利用研究电子数据捕获 (REDCap) 平台和其他工具来支持药物和症状跟踪.
- 将慢性护理模型 (CCM) 和以用户为中心的设计 (UCD) 原则应用于个性化的患者应用程序.
主要方法:
- 代设计和开发PFT的四个主要版本.
- 将REDCap平台与其他工具集成,以增强功能.
- 患者代表参与原型评估.
主要成果:
- 通过多个版本成功设计和发展PFT架构.
- 对于PFT开发,REDCap表现出了超越其标准调查功能的适应性.
- 患者反为原型改进提供了信息,并突出了设计方面的考虑.
结论:
- 开发的PFT架构为患者自我管理工具提供了一个框架.
- REDCap可以有效地用于构建复杂的面向患者的技术.
- 未来的研究应该专注于癌症护理中PFT的可持续发展战略.
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