有争议的疾病,有争议的身份:纤维肌痛女性如何在线构建合法性
Jenna M Kerr1, Carey DeMichelis2
1Community Health and Social Innovation Hub, University of the Fraser Valley, 33844 King Rd, Abbotsford, BC, V2S 7M7, Canada.
Social science & medicine (1982)
|June 12, 2025
概括
患有纤维肌痛 (FM) 的女性通过发展疾病素养和在线社区中进行身份工作来建立合法性. 这有助于他们获得医疗保健提供者的认可,作为有效的疼痛患者.
科学领域:
- 健康和疾病的社会学
- 医学人类学 医学人类学
- 质量健康研究 质量健康研究
背景情况:
- 纤维肌痛 (FM) 是一个有争议的医疗状况,往往导致患者合法性的挑战.
- 患有FM的女性在医疗保健环境中遇到合法性,身份和道德的困境.
研究的目的:
- 探索患有纤维肌痛的女性的生活经历.
- 了解女性如何将 FM 合法化为疾病.
- 检查女性用来被认定为合法疼痛患者的策略.
主要方法:
- 在一个私人在线社区的民族观测",加拿大纤维女性".
- 与社区成员进行深入采访.
- 分析建立合法性的策略.
主要成果:
- 纤维肌痛 (FM) 为患者创造了重要的合法性,身份和道德困境.
- 在线社区"纤维纤维妇女加拿大"是建立合法性的关键"后台".
- 开发了两种合法性的关键策略:疾病识字和身份工作.
结论:
- 在线社区为患有纤维肌痛的女性提供了至关重要的支持,以应对医疗保健挑战.
- 妇女积极参与疾病素养和身份工作,以宣称自己的合法性和确保护理.
- 这项研究强调了争议性疾病寻求生物医学认可的道德维度.
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