数字时代炎症性肠病患者的信息需求:20年的纵向研究
Alberta L A Ajani1, Derk Frank1, Andreas Raedler2
1Department of Internal Medicine III, University of Schleswig-Holstein, Arnold-Heller-Straße 3, 24105 Kiel, Germany.
Journal of clinical medicine
|June 13, 2025
概括
在线咨询补充了炎症性肠病 (IBD) 患者的医疗保健,解决了饮食,营养和生物药物等治疗方面的信息缺口. 这些论坛提高了患者对管理病情的信心.
科学领域:
- 胃肠病学 胃肠病学
- 数字健康数字健康
- 患者支持 患者支持
背景情况:
- 炎症性肠病 (IBD) 显著影响日常生活.
- 患者经常缺乏足够的信息,尽管定期咨询医生.
- 在线论坛为患者信息需求提供了一个补充资源.
研究的目的:
- 分析IBD患者的信息缺陷.
- 评估患者的兴趣在一个在线咨询论坛超过20年.
- 确定IBD患者讨论的关键话题.
主要方法:
- 对20年的在线咨询数据 (2003年,2013年,2024年) 的分析.
- 包括681名患有克罗恩病,性结肠炎,未分类性结肠炎和没有特定诊断的患者.
- 对不同时间点和诊断的患者兴趣进行比较.
主要成果:
- 性结肠炎患者专注于饮食,营养和生物制剂.
- 克罗恩病患者对饮食,营养,生物制剂,疼痛,成像和压力管理感兴趣.
- 没有特定诊断的患者寻求有关饮食,营养,诊断和疼痛治疗的信息.
结论:
- 在线咨询是标准IBD护理的宝贵补充.
- 这些论坛增强了患者的信心,并提供了关键信息.
- 通过在线平台,可以系统地识别和减少信息差距.
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