年龄和生活阶段在经验的肌缩性侧面硬化症:一个范围审查审查
Andrea S E Parks1,2,3, Lesley Gotlib Conn1, Krystle Amog1
1Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Canada.
概括
这份综述强调,虽然年龄会影响患有肌缩性侧面硬化症 (ALS) 的人的生活经历,但年龄分级的角色和生命过程的转变需要更多的研究来个性化ALS护理.
科学领域:
- 神经学 神经学
- 老年学是一门学科.
- 社会学 社会学 社会学
背景情况:
- 了解患有肌缩性侧面硬化症 (plwALS) 的人的生活经历对于解决他们独特的需求至关重要.
- 年龄和生命历程阶段对疾病经验的影响已得到充分证实,但与ALS年龄相关的具体复杂性尚未得到充分研究.
研究的目的:
- 系统地绘制现有证据,以了解年龄,年龄级角色或生命过程的转变如何塑造患有ALS的生活经验.
- 确定有关ALS经验与年龄相关方面的文献中的具体差距.
主要方法:
- 按照乔安娜·布里格斯研究所的方法进行了全面的范围审查.
- 包括2010年以后发表的同行评审的初级研究研究,重点关注成人ALS患者及其与年龄有关的影响.
- 通过描述性总结和定性内容分析对与ALS经验和年龄维度相关的发现进行数据综合.
主要成果:
- 对42项研究的分析 (来自45篇文章) 显示,plwALS的思想,感受和情绪因年龄或年龄分级的角色而异.
- 尽管它们对疾病经验有很大的影响,但在经过审查的文献中并没有一致地解决生命过程过渡问题.
- 有大量的研究承认年龄的影响,但年龄分级角色和过渡的具体细微差别仍然不太被探索.
结论:
- 虽然记录了许多与年龄相关的ALS经验方面,但需要进一步调查年龄分级角色和生命过程转变的意义.
- 识别和解决与ALS生活中的与年龄相关的复杂性对于开发和提供更个性化和更有效的患者护理至关重要.
- 未来的研究应该优先了解不同的生命阶段和社会角色如何影响ALS患者的旅程.
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