德国乙型肝炎患者对耻辱的看法:跨部门调查
Bettina M Zimmermann1,2,3, Theresa Willem1,2,4, Michael Rost5
1Institute of History and Ethics in Medicine, TUM School of Medicine and Health, Technical University of Munich, Ismaninger Str. 22, Munich, 81675, Germany, 49 8941404041.
JMIR formative research
|June 13, 2025
概括
在德国,乙型肝炎患者的耻辱感比亚洲国家要小. 非德语母语,隐私需求和诊断秘密与更高的感知乙型肝炎污名有关.
科学领域:
- 肝病学 肝病学是一种肝病学.
- 社会科学 社会科学 社会科学
- 公共卫生 公共卫生
背景情况:
- 与乙型肝炎相关的社会耻辱是全球广泛研究的.
- 在西欧背景下对乙型肝炎的耻辱存在有限的研究.
- 假设的因素包括年龄,教育,性别,隐私需求和母语.
研究的目的:
- 为了确定在德国的乙型肝炎患者中感知到的社会耻辱的普遍性.
- 确定与乙型肝炎相关的耻辱感知相关的因素.
主要方法:
- 在德国调查了195名乙型肝炎患者,使用伯格污名度量表.
- 通过纸质问卷收集关于耻辱感,隐私需求和人口统计数据.
- 排除了无法阅读德语的患者.
主要成果:
- 非德语母语,更高的数据隐私需求和诊断秘密预测了更高的感知耻辱感.
- 年龄,性别和教育水平并不能预测人们的耻辱感.
- 平均耻辱评分为5.52 (SD为6.02),中位数为3.50.
结论:
- 与亚洲研究相比,德国的乙型肝炎患者报告的耻辱程度较低.
- 非德语母语突出了耻辱的文化和社会层面.
- 干预措施应侧重于社区参与和医疗保健专业人士的敏感性.
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