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Updated: Jun 16, 2025

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1型糖尿病青少年所经历的耻辱:系统性审查和元合成
Rui Wang1, Wencai Liu1, Cuicui Yang1
1School of Nursing, Nanjing University of Chinese Medicine, Nanjing, China.
概括
患有1型糖尿病的青少年在个人,人际关系和社会层面上经历了耻辱. 了解这些经验是制定有效干预措施和为年轻人管理糖尿病培养支持性环境的关键.
科学领域:
- 内分泌学 在内分泌学.
- 心理学 心理学 心理学
- 公共卫生 公共卫生
背景情况:
- 1型糖尿病 (T1D) 是一种慢性疾病,需要终身治疗.
- 青春期是一个关键的发展时期,有着独特的心理社会挑战.
- 与慢性疾病相关的耻辱感可以显著影响青少年的福祉.
研究的目的:
- 综合关于1型糖尿病青少年的耻辱经历的定性证据.
- 为了确定这个人群所遇到的多面性耻辱的性质.
- 为制定有针对性的反耻辱化策略提供信息.
主要方法:
- 定性研究的系统的元综合.
- 在六个主要数据库 (PubMed,Cochrane图书馆,CINAHL,MEDLINE,Embase,PsycINFO) 进行的搜索从创立到2024年2月.
- 综合使用托马斯和哈登的方法论发现,坚持PRISMA指南.
主要成果:
- 十七项定性研究被纳入了元合成.
- 两个总体主题出现了:"生活在耻辱中"和"应对耻辱".
- "生活在污名化中"包括个人 (感知,内化),人际和结构性的污名化; "应对污名化"包括积极的应对和逃避避免策略.
结论:
- 这是第一个探索青少年个人,人际关系和结构层面的T1D耻辱的元综合.
- 鉴定出多种来源的耻辱凸显了对文化知情,多层次干预的需要.
- 加强应对机制和创造无耻感的环境对于患有T1D的青少年至关重要.
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