在r/hospice和r/palliative Subreddits上表达的临终关怀和息护理经验
Riley Shin1, Ashley Shin2, Elizabeth K Nugent3
1Texas Tech University Health Sciences Center School of Medicine, Lubbock, TX, USA.
The American journal of hospice & palliative care
|June 14, 2025
概括
在线讨论揭示了临终关怀和息护理中的沟通缺口. 关键主题包括死亡过程,情感支持和护理物流,突出未满足的患者和护理人员需求.
科学领域:
- 医学 社会科学 医学社会科学
- 在线健康社区 在线健康社区
- 终身护理研究 终身护理研究
背景情况:
- 临终关怀和息治疗对于终身支持至关重要.
- 像Reddit这样的在线论坛促进了信息共享和情感支持.
- 了解用户生成的内容可以识别护理缺口.
研究的目的:
- 分析热门问题和寻求建议的帖子在临终关怀和息护理子红包.
- 确定这些在线社区中的关键主题和用户关注点.
- 发现患者,护理人员和医疗保健提供者之间的沟通差距.
主要方法:
- 从r/住院和r/息的369个原始职位的定性分析 (2024年4月至10月).
- 收录标准:包含问题,寻求建议,关键词或问号的帖子.
- 使用主题和来确定关键主题和子主题.
主要成果:
- 七个主要主题出现了:死亡过程 (24%),应对/支持 (22%),物流 (22%),药物 (13%),负面经历 (10%),提供者支持 (7%),以及其他 (2%).
- 死亡过程和患者/护理人员的支持是重要的调查领域.
- 分析揭示了这些总体类别内的特定子主题.
结论:
- 在临终关怀和息护理中存在重大沟通缺口.
- 消除死亡过程的神秘性和加强患者/护理人员的支持是需要改进的关键领域.
- 在线讨论强调了在终身护理中需要更好的沟通策略.
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