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为欧洲各地的自闭症患者提供服务

Siti Nurnadhirah Binte Mohd Ikhsan¹, Rosemary Holt², Joyce Man²

¹Autism Research Centre, Department of Psychiatry, University of Cambridge, Douglas House, 18B Trumpington Road, Cambridge, CB2 8 AH, UK. si377@medschl.cam.ac.uk.

Molecular autism

|June 14, 2025

概括

欧洲的自闭症患者在获得治疗和医疗等基本服务方面存在不一致. 迫切需要改善政策,以确保整个非洲大陆的自闭症社区获得公平的服务.

科学领域:

自闭症谱系障碍研究研究
医疗保健的获取和政策
社会服务研究社会服务研究

背景情况:

欧洲的自闭症社区在获得服务方面遇到重大障碍.
自闭症诊断率的上升凸显了对可访问的支持系统的日益增长的需求.

研究的目的:

调查欧洲自闭症患者各种服务的可访问性.
确定自闭症患者无法获得服务的原因.
检查服务获取中的基于年龄和性别的差异.

主要方法:

在欧盟和英国范围内对2322名被正式诊断为自闭症的个人和家庭照顾者进行了ACCESS-EU调查.
收集关于服务访问,等待时间和访问失败原因的数据.
分析了基于年龄组和性别的差异.

主要成果:

报告的服务获取率较低,包括治疗 (33.38%),心理健康 (29.89%) 和教育支持 (27.05%).
不成功访问的常见原因包括服务不可用 (23.08%),不适合 (20.04%),长时间等待 (17.42%) 和负担不起 (11.80%).
在不同欧洲国家观察到服务访问的显著差异,波兰和英国有显著的不一致性.

结论:

在欧洲,自闭症患者的服务获取非常不一致,需要进行重大政策改革.
需要改进,以确保自闭症人口公平及时获得基本服务.

关键词:

自闭症自闭症自闭症欧洲欧洲欧洲欧洲欧洲欧洲欧洲欧洲政策政策政策政策服务访问服务访问.服务障碍服务障碍服务服务服务服务服务调查调查调查调查

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