面微小症的生活质量:通过年轻成年期的弹性
Dominic J Romeo1, Leigh Friedman1, Manisha Banala1
1Division of Plastic, Reconstructive and Oral Surgery, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
概括
与规范相比,成年人面显微症 (CFM) 报告生活质量 (QOL) 较低,但社会和环境QOL较高. 尽管面临挑战,但患有CFM的成年人表现出性,并过上充实的生活.
科学领域:
- 医学科学 医学科学 医学科学
- 生活质量研究 研究 生命质量研究
- 面外科手术的结果
背景情况:
- 儿童面显微症 (CFM) 的生活质量 (QOL) 已得到证实,但成人QOL仍未得到充分研究.
- 了解成人QOL对于全面的患者护理和支持至关重要.
研究的目的:
- 用验证的问卷来比较患有CFM的成年人的QOL与一般人群.
- 调查CFM严重程度与QOL结果之间的关系.
主要方法:
- 一项涉及成年人 (≥18岁) 被诊断患有CFM的横截面研究.
- 世界卫生组织 (WHO) 的生活质量 (QOL) 问卷被使用.
- 数据与世卫组织标准样本进行了比较.
主要成果:
- 与世卫组织规范相比,患有CFM的成年人报告身体领域的QOL较低 (P < .01),但在社会 (P < .01) 和环境 (P < .01) 领域的QOL较高.
- 心理QOL与标准样本相似 (P > .05).
- 在CFM表型严重程度或手术史和QOL结果 (P > .05) 之间没有发现任何关联.
结论:
- 接受CFM治疗的成年人体验到身体QOL降低,但表现出增强的社会和环境QOL.
- 这些发现突显了CFM成年患者的性,表明他们的生活不仅仅是由他们的状况来定义的.
- 这项研究强调了CFM成年人高质量生活的潜力.
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