手术瘤学的患者报告结果措施:NIH和AMA可读性合规性的跨部门研究
Harjot Uppal1, Daniel Garcia1, Ryan Marder1
1St. Joseph's University Medical Center, Paterson, New Jersey, USA.
Journal of surgical oncology
|June 16, 2025
概括
大多数外科瘤患者报告的结果指标 (PROM) 对于患者来说太难理解了. 提高PROM可读性对于更好地理解和准确地收集癌症治疗中的数据至关重要.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者报告的结果
背景情况:
- 患者报告的结果测量 (PROM) 对于在外科瘤学中评估患者健康至关重要.
- 目前的PROM经常超过推的可读性水平,阻碍了患者的理解.
- 国家卫生研究院 (NIH) 和美国医学协会 (AMA) 的指导方针建议六年级的阅读水平.
研究的目的:
- 评估外科瘤学中常用的PROMs的可读性.
- 为了确定PROM在多大程度上符合既定的可读性准则.
主要方法:
- 使用Flesch阅读易度得分 (FRES) 和简单测量Gobbledygook指数 (SMOG) 评估了24个外科瘤学PROM的可读性.
- 定义的第六级可读性为FRES ≥80或SMOG <7.0.
- 雇佣了斯皮尔曼的相关性来分析FRES和SMOG之间的关系.
主要成果:
- 平均阅读水平是八年级到九年级 (平均FRES=70,平均SMOG=8).
- 在24个PROM中,只有7个符合至少一个可读性标准.
- 75%的PROM超过了六年级推的阅读水平.
结论:
- 大多数手术瘤学PROM不易被患者阅读.
- 低可读性可能会阻碍患者的理解,并损害数据的准确性.
- 建议通过简化语言和多媒体来提高PROM的可访问性.
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