高度质瘤诊断的沟通 - 基于特定研究的调查问卷的患者反思和观点
Denise Loeschner1, Prajjwal Raj Wagle2, Anna Jung2
1Department of Neurosurgery, Helios Clinics Erfurt, Nordhaeuser Str. 74, 99089, Erfurt, Germany. denise.loeschner@helios-gesundheit.de.
Journal of neuro-oncology
|June 17, 2025
概括
被诊断为高度质瘤 (HGG) 的患者需要个性化沟通和支持. 提高患者教育和涉及支持系统,可以改善神经瘤学中的应对能力和弹性.
科学领域:
- 神经瘤学神经瘤学
- 患者沟通 患者沟通
- 提供心理支持.
背景情况:
- 高度质瘤 (HGG) 诊断给患者带来了重大的沟通和支持挑战.
- 了解患者的情绪反应和信息需求对于优化神经瘤治疗至关重要.
研究的目的:
- 分析HGG诊断期间的通信环境.
- 评估患者的情绪反应和进一步支持和信息的需求.
- 通过改善患者教育和沟通,优化神经瘤治疗.
主要方法:
- 在2024年3月至5月期间,使用10项问卷进行了一项单中心调查.
- 调查问卷分析了HGG患者的沟通环境,情感方面,需求以及教育/信息印象.
- 描述性统计和奇方位测试用于数据分析.
主要成果:
- 大多数患者 (62%) 在诊断时得到了亲属 (42%) 或伴侣 (22%) 的支持.
- 大多数 (64%) 的人对初步信息感到满意,但32%的人希望获得更多细节.
- 患者表示需要进一步的信息 (14%),额外的支持 (12%),以及延长的对话时间 (10%).
结论:
- 个性化医疗咨询对于传达HGG诊断和治疗至关重要.
- 建议在治疗讨论中涉及患者的支持系统.
- 社区对患者和护理人员的持续支持,以及改善教育和可访问性,可以增强应对能力和弹性.
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