12-14岁的脊柱裂青少年及其父母对社会运作的看法
Ranya Bafail1,2, Catherine Vincent1, Kathleen Sawin3
1College of Nursing, University of Illinois Chicago, Chicago, Illinois, USA.
Comprehensive child and adolescent nursing
|June 17, 2025
概括
家庭支持和同龄人关系是脊柱裂变 (SB) 青少年社会功能的关键. 解决移动问题,疼痛和耻辱对他们的福祉和社会参与至关重要.
科学领域:
- 儿科健康 儿科健康
- 发展心理学 发展心理学
- 康复医学 康复医学 康复医学
背景情况:
- 脊椎裂 (SB) 给人带来了终身的身体,认知和社会挑战.
- 患有SB的青少年由于疼痛和运动障碍等限制,经历了社会功能困难.
- 在SB青少年中促进社会功能的因素仍未得到充分研究.
研究的目的:
- 调查SB青少年及其父母对社会运作的看法.
- 确定影响SB青少年社会参与的促进者和障碍.
- 为提高社会福祉的有针对性的干预措施的发展提供信息.
主要方法:
- 使用交互式采访进行的定性描述性研究.
- 参与者包括10名被诊断患有骨髓瘤结核的青少年-家长双.
- 使用直接内容分析来确定关键主题.
主要成果:
- 家庭关系和支持网络是社会功能的主要促进因素.
- 移动性限制,耻辱和友困难带来了重大挑战,导致孤立.
- 父母的期望影响了青少年的社会参与水平.
- 社会参与对身体和精神健康都有积极的影响.
结论:
- 患有SB的青少年,特别是少数群体,面临着巨大的社会障碍,包括疼痛,流动性问题和耻辱感.
- 强大的家庭和同行支持对于社会参与和整体福祉至关重要.
- 干预措施应侧重于减少耻辱,促进包容,加强社会参与.
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