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"没有什么" - - 探索乌拉圭自闭症患者的诊断和服务获取:一项定性研究

Maria Cecilia Montenegro¹, Gabriela Garrido², Leyla Feize¹

¹The University of Texas Rio Grande Valley, USA.

Autism : the international journal of research and practice

|June 17, 2025

概括

乌拉圭对自闭症诊断和服务的障碍很大,源于有限的认识,诊断的犹和专家的短缺. 农村地区面临的自闭症个人和家庭面临的挑战更大.

科学领域:

全球健康全球健康
发展心理学发展心理学
公共卫生政策公共卫生政策

背景情况:

自闭症研究主要反映了高收入国家,忽视了全球多样化的经验.
低收入和中等收入国家在自闭症诊断和治疗方面面临着独特的挑战.
乌拉圭在拉丁美洲背景下是这些挑战的典范.

研究的目的:

探索乌拉圭自闭症患者的诊断和服务获取障碍.
了解乌拉圭自闭症支持系统中家庭和专业人士的生活经验.
应用适用于低收入和中等收入国家背景的变化理论框架.

主要方法:

与乌拉圭自闭症患者的照顾者和关键信息者的半结构面试.
参与者选择的有目的抽样策略.
反思性主题分析,以确定定性数据中的突出主题.

主要成果:

多重障碍阻碍了诊断和服务获取,包括复杂的程序和有限的提供者对自闭症的认识.
经常报告诊断自闭症的犹和专业专业人员的短缺.
首都以外的个人遇到了额外的,复杂的困难.

结论:

解决乌拉圭的诊断和服务缺口需要对意识和专业培训进行系统性改进.
该研究强调了需要在低收入和中等收入国家为自闭症提供支持的特定背景方法.
公平获得自闭症诊断和基于证据的干预措施仍然是乌拉圭的一个关键挑战.

关键词:

变化理论的变化理论乌拉圭乌拉圭乌拉圭乌拉圭乌拉圭自闭症自闭症是什么障碍物障碍物障碍物诊断诊断诊断诊断诊断诊断服务访问服务访问服务.

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