慢性单侧前庭功能缺陷:通过ICF框架探索全方位症状和影响的定性研究
Mustafa Karabulut1, Hamide Avci2, Eda Yalçınkaya3
1Division of Vestibular Disorders, Department of Otorhinolaryngology and Head and Neck Surgery, School for Mental Health and Neuroscience, Maastricht University Medical Center, Maastricht, Netherlands.
Frontiers in neurology
|June 18, 2025
概括
慢性单侧前庭功能缺陷 (UVH) 会导致各种身体,认知和情绪症状影响日常生活. 目前的患者报告结果指标 (PROM) 无法充分捕捉这些挑战的全部范围,这表明需要量身定制的评估.
科学领域:
- 垂体神经科学 垂体神经科学
- 康复医学 康复医学 康复医学
- 健康 结果 研究 研究 结果
背景情况:
- 慢性单侧前庭功能缺陷 (UVH) 呈现出一系列复杂的症状,影响患者的福祉和日常功能.
- 现有的患者报告结果指标 (PROM) 经常与国际功能,残疾和健康分类 (ICF) 等框架进行评估,以确保全面评估.
研究的目的:
- 综合识别与慢性UVH相关的全谱症状和影响.
- 评估ICF框架内的当前PROM在多大程度上捕捉到这些报告的症状和影响.
主要方法:
- 一项定性研究,涉及15名被诊断患有慢性UVH的患者的半结构面试.
- 采访被转录并使用共识方法进行分析,直到达到主题和.
- 来自采访和选定的PROM (DHI,HADS,EQ-5D-5L) 的领域被确定并与ICF框架联系起来.
主要成果:
- 患者报告了广泛的症状,包括16个身体症状,4个认知症状,5个情绪症状,在驾驶,睡眠和社交环境中存在重大挑战.
- 确定的ICF关键领域包括身体功能 (前体,情绪,听力),活动 (移动性,人际关系) 和环境因素 (光,声音).
- PROM经常忽略了诸如视觉,记忆,多任务和特定生活质量活动等关键领域.
结论:
- 慢性UVH导致广泛的身体,认知和情绪症状,严重影响日常生活.
- 标准的PROMs (DHI,HADS,EQ-5D-5L) 并没有完全涵盖UVH的多方面的影响,导致许多方面被低估.
- 可能需要专门的PROM来准确捕捉慢性UVH患者经历的独特症状,行为和功能限制.
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