在以男性为主的血友病人口中评估耻辱:一项中国横截面研究
Lijuan Ye1, Zhuqin Liu1, Jianqiong Cao1
1Department of Hematology, Nanfang Hospital, Southern Medical University, Guangzhou, China.
Frontiers in psychiatry
|June 18, 2025
概括
血友病患者的耻辱是中度至严重的,与频繁出血和残疾有关. 更高的社会支持和婚姻减少了耻辱感,而经济困难增加了它.
科学领域:
- 医学研究 医学研究
- 血液学 血液学 血液学
- 心理社会研究是心理学研究.
背景情况:
- 血友病是一种罕见的凝血障碍,在中国每10万人中患有2.73例.
- 尽管医学取得了进展,但血友病患者仍面临慢性疼痛,关节出血和功能障碍.
- 这些挑战导致心理困扰,焦虑,抑郁和社会耻辱.
研究的目的:
- 评估中国血友病患者目前的社会耻辱程度.
- 确定影响污名的流行和严重性的关键因素.
主要方法:
- 便利抽样从治疗中心招募了232名血友病患者 (231名男性,1名女性).
- 社会影响量表 (SIS) 衡量了耻辱,社会支持评级量表 (SSRS) 评估了社会支持.
- 多重线性回归分析确定了与耻辱程度相关的因素.
主要成果:
- 平均总耻辱评分为63.88±15.27,表明中度至严重的耻辱.
- 较高的社会支持 (β = -0.69) 和结婚 (β = -6.17) 与较低的耻辱感有关.
- 频繁出血 (β = 7.79),下肢残疾 (β = -6.11) 和较低的月收入 (β = -1.85) 与增加的耻辱感有关.
结论:
- 血友病患者经历中度至严重程度的社会耻辱.
- 干预措施应针对未婚患者,经济困难,下肢残疾和频繁出血的患者.
- 改善心理健康教育和社会支持对于减少耻辱至关重要.
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